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Congratulations to the 2023 MPN Heroes!

It is a great honor to present the 2023 MPN Heroes. They have each demonstrated a strong commitment to making a difference in the lives of people living with myeloproliferative neoplasms (MPNs). Check out their personal stories and get ready to be inspired!

NicholeArd

NICHOLE ARD

Senior Clinical Studies Coordinator

 

Nichole Ard is an MPN Hero for her extraordinary leadership and strong patient focus while coordinating myeloproliferative neoplasm (MPN) clinical trials at MD Anderson Cancer Center. As an excellent protocol manager, her ability to identify MPN-specific issues has had a profound positive impact by streamlining MPN clinical studies and advancing patient care.


Nichole’s dedication inspires respect from colleagues and patients alike. She was nationally recognized as a primary reason for the success of one key clinical trial, as she was the first person at any research location to observe injection site reactions on patients’ skin early in the trial. Her astute observations led her to propose solutions that helped the team quickly refine trial management techniques and benefit patients.


At the clinic, patients and staff appreciate her passion, energy, and advocacy for the unique needs of her patients. Nichole also knows how it feels to be on the other side of the caring spectrum. In 2009, her mother was treated at MD Anderson for a serious illness. Nichole’s early hospital experiences give her deep empathy and compassion as a committed patient advocate. She spends endless hours with patients throughout―and beyond―the clinical phase of their MPN journey. As an MPN Hero who works on the cutting edge of research, Nichole finds it extremely satisfying that her efforts may one day contribute to a better life for all people affected by MPNs.

EdBartholemy

ED BARTHOLEMY

Caregiver

 

Ed Bartholemy is an MPN Hero for his compassionate dedication to his wife, Nancy, in her 40-year journey with myelofibrosis (MF). Along the way, he became a committed advocate for driving meaningful change for patients in the MPN community.


Ed’s path to becoming an MPN Hero started in 1981 when Nancy was diagnosed with MF. But the most intense period of their story began in 2021. That’s when Nancy had a stem cell transplant at the City of Hope in Duarte, California. In the space of a challenging two years, Nancy recovered, relapsed, and reached remission. In between endless commutes from home to the hospital, Ed posted detailed, heartfelt updates on CaringBridge, a health journey website. His posts raised awareness of myeloproliferative neoplasms (MPNs) like MF by enabling more than 10,000 people to connect, empathize, and draw inspiration from reading about Nancy’s trials and triumphs.


With Nancy in remission since May 2023, Ed continues his strong commitment to the MPN community. He has served for many years on the MPN Research Foundation Board of Directors, where he is instrumental in supporting and funding the foundation's research projects as a member of the Executive Committee. As an MPN Hero in the Caregiver category, Ed is thrilled to consider himself a former caregiver. Both he and Nancy look forward to their future together. “It’s a new world for us!”

PatrickBuxton

PATRICK BUXTON

RN

 

Patrick Buxton, RN, is an MPN Hero for his outstanding, dedicated care and advocacy for people living with myeloproliferative neoplasms (MPNs). A clinical nurse manager at the Fred Hutchinson Cancer Center, Patrick provides an empathetic and caring ambiance to the busy MPN clinic.


When he is not managing the complexities of working on insurance authorizations, answering patient requests for information, reviewing lab results, fulfilling administrative duties, or conferring with doctors, Patrick can be found offering compassion and support to patients who may be anxious about their MPN diagnosis.


Patrick works tirelessly to ensure the best possible care of patients visiting the outpatient clinic, sometimes advocating on behalf of a single individual for weeks at a time. He is an astute RN who listens for issues his patients may be experiencing and remains ready to help with appropriate supportive care or referrals, or by collaborating with other Healthcare Professionals on his patients’ behalf. Patrick is a constant presence and source of support for each and every one of his patients as they navigate their MPN journey.

MarilynEdwards

MARILYN KAY EDWARDS

Patient Advocate

 

Marilyn Kay Edwards is an MPN Hero for her long-term, inspiring outreach as an MPN Peer with the Voices of MPN CHAMPN Program. The initiative provides an opportunity to connect with a peer who may share a similar experience with a myeloproliferative neoplasm (MPN). Over the years, Marilyn has empowered many people living with MPNs by connecting one-on-one via phone and sharing her own unique story.


Marilyn’s MPN journey started when she was diagnosed with essential thrombocythemia (ET) in 1986.


By 2017, a bone marrow procedure revealed that her ET had transformed into myelofibrosis (MF), another classic type of MPN. Marilyn is well aware of how isolating an MPN diagnosis can be. That’s why she shares her challenges and experiences openly and honestly. The peers with whom she talks are grateful to connect with another person who may know what they’re going through.


Marilyn credits her MPN mentor, David Denny, with encouraging her to share her MPN story and pay it forward to others who are looking for reassurance and support after an MPN diagnosis. “I want to do whatever I can to help mentor other people.” As a true MPN Hero dedicated to educating others through her own real-life MPN experiences, Marilyn goes to extraordinary lengths to help others living with MPNs find understanding, strength, and hope.

NMarinaKremyanskaya

MARINA KREMYANSKAYA

MD, PhD

 

Marina Kremyanskaya, MD, PhD, is an MPN Hero because of her extraordinary impact as an educator, physician, and leader in myeloproliferative neoplasm (MPN) research. She’s an Assistant Professor of Medicine, Hematology and Medical Oncology at the Icahn School of Medicine at Mount Sinai. With masterful technique, she trains future physicians and leads weekly nurse mentoring sessions, explaining details of what her team needs to know about MPNs.


As the medical director for the inpatient oncology unit at The Mount Sinai Hospital, Dr. Kremyanskaya is renowned for her exceptional patient care. Her MPN expertise, kindness, and gentle demeanor―combined with her empathy and respect for others―enables her to focus on each patient, meeting them wherever they are on their MPN journey. Deeply committed to her patients, she works tirelessly to help them navigate the healthcare system and get the care they need.


Dr. Kremyanskaya also demonstrates her commitment to the MPN community through her transformational clinical research. She has served as a principal investigator and global lead on numerous clinical trials. She publishes regularly, sharing groundbreaking results and increasing international awareness of MPNs. For her compassion and contributions to improving the lives of people living with MPNs, it’s no wonder that Dr. Kremyanskaya is recognized as the heart of the Mt. Sinai MPN program—and an MPN Hero.

ShamimSalman

SHAMIM SALMAN

MD

 

Shamim Salman, MD, is an MPN Hero for dedicating her years of hematology/oncology healthcare expertise to improving the lives of people affected by myeloproliferative neoplasms (MPNs). Dr. Salman’s remarkable caring and empathetic disposition brings compassionate support to the patients she meets at Richmond University Medical Center.


She makes an extraordinary effort to educate her patients and their families, as well as the interns she mentors, about specific MPN symptoms and the impact they may have on patients. The leadership Dr. Salman provides has helped her patients and their loved ones improve their outlook and regain a sense of optimism on their MPN journeys.


Dr. Salman’s commitment to helping patients affected by MPNs is apparent through her frequent check-ins, where she listens carefully to patient comments and is attentive to their feedback. She provides further patient support by connecting her patients with appropriate medical teams, clinical trial specialists, and online support groups. The depth of knowledge Dr. Salman shares with her patients has been described as “… the most informative advisement we had ever received.” As a true MPN Hero, Dr. Salman is recognized as an exceptional physician for making a difference in the lives of her patients living with MPNs.

AndrewSchafer

ANDREW SCHAFER

MD

 

Andrew Schafer, MD, is a longtime contributor to myeloproliferative neoplasms (MPN) research and treatment. Dr. Schafer is the Director of the Richard T. Silver, MD Myeloproliferative Neoplasm Center at New York-Presbyterian Hospital/Weill Cornell Medical Center and is a member of the Board of Directors of the MPN Research Foundation.


Prior to joining the Board of Directors of the MPN Research Foundation, Dr. Schafer was chair of an annual grant program founded by the Scientific Advisory Board. During his tenure as chair, Dr. Schafer added a personal touch to each grant cycle as he guided and reviewed application requests. He assembled panels of expert reviewers to evaluate each proposal in detail, guide peer-review sessions, and help the foundation to fund proposals with the highest potential for success. Under his informed, level-headed, and respected leadership, the foundation has awarded more than $18M in research funding to date.


Throughout his storied career, Dr. Schafer has supported the betterment of the MPN community as a researcher and leader in multiple roles in top research organizations. He has always reserved time to continue seeing patients. He believes that one of the most valuable parts of practicing and researching MPNs is the ability to discover what is unique about an individual patient's experiences.

ThomasSilver

THOMAS SILVER

Patient Advocate

 

Thomas Silver exemplifies the belief that everyone can play a role in advancing research and care for people living with myeloproliferative neoplasms (MPNs). For 12 years, Thomas has served on the Board of the Cancer Research and Treatment Fund (CRTF). He spearheads the organization's mission of funding laboratory and clinical research focused on the cause, prevention, treatment, and cure of MPNs.


As Board President, Thomas works tirelessly to ensure the organization's ability to support innovative MPN research. So far, the CRTF has directed millions of dollars to promising MPN clinical trials. The CRTF continues to provide financial support for the Richard T. Silver, MD Myeloproliferative Neoplasms (MPNs) Center at NewYork-Presbyterian/Weill Cornell Medical Center.


Thomas’ continuous commitment to the MPN community was exemplified at a CRTF Cancer Survivor Hall of Fame fundraiser. His good friend and fraternity brother, Nick, was diagnosed with myelofibrosis (MF) and underwent a successful bone marrow transplant. Thomas brought Nick to the event along with his bone marrow donor and transplant doctor. He also invited 35 of their fraternity brothers, who provided emotional and financial support as Nick shared his heartfelt story. Months of Thomas' personal time went into the evening to provide a stage for Nick to share his MPN journey. Thomas’ dedication not only raised $430K for MPN research, but it led to additional people enrolling for the bone marrow transplant registry.

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